Tuesday, April 12, 2011

11 PM Tuesday, April 12, 2011

Just making a cup of tea while getting ready for bed, so I thought I'd update while I wait for the teapot to boil....

We went to Dr. Menco's today and Ed got his Neulasta injection.  We also chatted briefly about the longer term treatment plans and discussed stem cell transplant information.  It's clearly a treatment we need to research further, so we'll be consulting with Dr. De Voss from UCLA as well as the City of Hope to get more information.   There is certainly an overwhelming amount of information and research -- thank heaven for the internet and wireless access!  As much as Ed and I complain about "technology" and texting and cell phones being so irritating, when you really need information, and fast......it's hard to remember a time when we had to use the library!  Another blessing - even though I am a card-carrying member of and frequent visitor to the Thousand Oaks Library!

Dr. Mazur checked Ed today and said everything seems to be going well with the antibiotics, but he wants Ed to continue on the IV one (Cefazolin) for 4 weeks (3 times a day).   But the biggest news of the day --- Ed had a small bowl of ice cream today.   Dr. Johnson prescribed a medication today that may help with the digestion process, so we'll see how it all goes.  Ed started feeling a little crummy tonight and has had a pretty non-stop case of hiccups for several hours, but he's managing through it.  It was an emotional day and physically tiring as well.  He's pretty tired tonight, so hopefully he'll get a solid block of sleep now that all the meds for the night are finished and he's hooked up to the TPN.  (Tonight's imaginery menu - pepperoni pizza and apple pie a la mode - heated of course with real whipped cream, since if there isn't real whipped cream, there's no point in heating the pie and the ice cream would have to be on the side, not on top.)  Movie buffs ?????

Okay, clearly it's late and I'm rambling.  Regular blog readers are probably used to it by now, but for the neophite blogger, I have probably far exceeded the requisite threshhold for HUH?????

We both thank you each and every one for your continued and steadfast support, offers of help, encouraging words and faithful log-ins.  There is still a long road ahead, but like any race worth running, all of you who have and continue to show up and encourage him from all sides, make each step easier and victory feel closer.  It's truly inspiring and awesome.  Thank you, thank you, thank you.   Goodnight.

4 comments:

  1. Let me be the first to give the answer - Sally, in When Harry Met Sally, and it's shortly before the famous scene where the woman says "I'll have what she's having!" One of my all time faves, just like you 2! Praying that the battle will be won - remember David and Goliath?? xoxo - jeanne

    ReplyDelete
  2. Also, my personal opinion is if one had to choose only one food to eat, ice cream would be the choice, no questions! Think of all of the protein and calcium you're getting (and of course, if it's chocolate, the antioxidants)! Didn't know it was a health food, did you?

    ReplyDelete
  3. Hey congrats on wolfing the ice cream, Ed; I hope it was chocolate with pieces of chocolate donuts in it! Seriously, small victories equal big accomplishments - - and this is definitely one of them. Remember how you eat an 800 lb. elephant (or bowl of ice cream) - one bite at a time. Love you guys, TC

    ReplyDelete
  4. Keep putting one foot in front of the other. I think about you two every day. Continued prayers for you.TB

    ReplyDelete