Just a quick note before I dash off back to UCLA.
Ed got checked-in and situated yesterday afternoon with much less kafuffle than our previous experience. The stem cell transplant coordinator came by and introduced herself.....so begins the odyssey of the stem cell transplant world. Overwhelming for sure - she presented us with a big binder full of info and consent forms to review, lots of details to be worked out and questions to be asked and answered. We will have several more meetings in the next couple of weeks and it looks like the process of harvesting and transplant will start mid-June.
They finally got Ed's chemo started around midnight (several tests needed to be done first as well as the Rituxan and the pre-chemo meds). I got home around 2 AM so I could be in he office for payroll Wednesday and now I'm heading back down to UCLA. The stem cell doctor will be there at 11 AM so I'm rushing off. Talked to Ed this morning early and he did well through the night and slept between infusions with very little discomfort and no unexpected reactions. All is well so far.
I'll post a much longer update later today with info on the stem cell situation. Just wanted to let you all know he's doing really well right now. Thanks for the messages, calls, thoughts and prayers.
Liz, thanks for keeping all of us updated. So, mid June Hmmm..... You know, I never know what to get you for your birthday anymore - what a better gift than a stem-cell harvest and transplant! It even outdoes my overnight delivery of Dairy Queen Dilly and Buster bars! Wish I'd thought of it first! Love you both!
ReplyDeleteSounds like things are going good there keep up the good work Ed, and Liz, SLOW DOWN!
ReplyDeleteP.S. kerfuffle. I haven't heard that word in a long time. My danish Great Grandfather used to say it!
Love you guys, TC