9 AM Monday, July 18, 2011

Another beautiful summer morning with lots of sunshine and blue sky.  Ed and I got out of the house and tried to go see a movie last night - Horrible Bosses - but it was sold out when we got to the theater, so we turned around and went home.  Caught the last half of 60 Minutes, watched a couple of TV movies and went to sleep by 10:30.  Us boring old people ---- but it felt great.  Especially after my adrenaline rush day on Saturday.

Ed has appointments this afternoon at the UCLA clinic and we'll hopefully get some answers about what the plan is for either having him stay at Tiverton House or coming back and forth to Thousand Oaks now.  It's really their decision, so we'll be prepared either way by packing a light overnight bag before we leave at lunchtime.  I think he's prefer to stay at home, but if he needs to be down their every day or two, the drive time is pretty tedious and time-consuming, so we'll probably opt for the Tiverton House.  He's maintained his normal temperature range all weekend and hasn't felt too bad other than tired, but he sure is waiting for his appetite to come back and for food to taste normal again.  Nothing he's used to eating tastes familiar - everything has a chemical or metallic taste which leaves his mouth coated with a heavy saliva that is really unpleasant.  The doctors tell us it's normal and may continue that way for some months - uggh!  But every day is one more forward, so we're just doing it. 

He's not quite feeling like company - in person or on the phone too much, so if you call and he doesn't answer, just leave him a message - he does listen to them and appreciates hearing your voice.  It may just take a few days or weeks for him to get feeling more energetic and social.  Certainly to be expected.

We stopped and saw his GTO on Friday and it's GORGEOUS to say the least.  The last little tweekings will be finished this week and then it will be home in our garage.  I know he can't wait for that and will be anxious to get strong enough to drive it.  Hopefully that will be soon.  He needs something that will bring a great big smile to his face!

Have a happy Monday......
Love,
L:iz