Its a sunny morning here in Thousand Oaks - a little bit of foggy haze as I look out in the direction of the ocean, but I'm sure it will burn off and provide more beautiful sunshine today. I hope Ed will feel well enough and it will get warm enough for him to sit outside and soak up some of the healing warmth. My cousin in coming over this afternoon to help me put the final details together for Tyler's graduation celebration and get his announcements finished. Trying to get a much as possible out of the way to focus on the UCLA visit and the arrangements that need to be in place for that journey to go as smoothly as possible. Lots to do and think about.
Ed had a little bit better day yesterday and by late afternoon, he got dressed and actually got out of the house for a bit to get somethings done with his hot rod. The trip out did wipe him out and he was pretty uncomfortable by the time he got home. The pain in his left shoulder and arm is pretty intense and the general neck and back pain he has from just being in bed so much is really starting to wear him down quite a bit. He did go back to taking the prescription pain meds last night after using Tylenol as we try to get him backed off the Dilaudid. He was really restless all night, trying ice packs, heating pads, etc. and he ultimately just sat up watching TV for quite a while. He's finally sleeping this morning for a bit and I hope today will get better. Monday we will re-address the shoulder and arm situation with the orthopaedic doctor and he has a chiro appointment for his neck and back that I hope will help. We were hoping for a few days of feeling pretty good before the next chemo, but the healing is taking longer this time. We just gotta roll with it and keep focused on the long term goals, as hard as that is sometimes in the moment.
If some of you have called him the past couple of days and he hasn't answered the phone or called you back, please be patient......he's just not feeling up to much of anything right now and it takes all his energy to just work through the discomfort right now. He so appreciates hearing your voice mails or hearing gthe comments from the blog, etc. He just can't respond right now. Thanks for understanding.
Have a wonderful Saturday. Take a big deep breath and appreciate your health today - it is surely a precious thing.
Hi Liz thanks for the update and I know things will go well with the graduation planning. Nice to have a little something fun to look forward to! Ed, hang in there brother, this I know is so frustrating for you; new aches and pains on top of old ones. Liz is right, keep the long-tern goals in mind, and when you do feel a little better, please dont go running out to do things that are going to wipe you out later. Let's get you healthy first; even when you feel good, you need to lay low so you can feel good two, three, four days in a row. Running out to do things when you feel good, only to put you back feeling lousy again, is just a setback to re-start you feeling good again. OK enough preaching, just take care of yourself and get your rest.
ReplyDeleteLove you man, TC
Well, Happy Monday hope you had a good weekend and got all the prep work for Tyler's party handled. Ed take it slow and easy, don't do too much if your feeling better... Listen to Tom!!! Thinking about you.
ReplyDeleteLove Deb
Excellent read, I just passed this onto a colleague who was doing a little research on that.
ReplyDeleteUCLA visit and the arrangements that need to be in place for that journey to go as smoothly as possible. Lots to do and think about.
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