I was hoping to have a better idea about when Ed will be coming home, but so far the doctors won't commit to anything. They did detect positive bacteria cultures in his blood and as of yesterday they were still waiting for the sub-strain tests to come back to try and narrow it down so they can treat with the appropriate antibiotic. Today they identified yet another group of bateria in his blood, so they are making changes to his medications, but his fever has been gone for about 24 hours now, so that's a good sign. His counts were down today but not all the way back at ground zero, so we're hoping he will at least be home by the weekend.
They removed his chest port on Monday afternoon when they finally got him out of ER and into a regular room. This is a routine thing when a fever develops because access lines are the most likely source for bateria to enter the body. He will likely need to have a new PICC line inserted before he goes home so we can continue with the IV antibiotics that will undoubtedly be needed, but it's not painful and he doesn't need anesthesia for it. We're really getting pretty good at this routine (unfortunately!) but at least we know what to expect and we're prepared. Ed's feeling much better today than he was over the weekend. He really didn't admit to me just how sick he was feeling until I got back in town. I stayed overnight on Monday and most of Tuesday, but today I'm getting caught up at the office and trying to unpack and get reorganized from being away. I'll be back down there tomorrow and try and get some more information and an idea about their plan for the rest of the week. Its hard to find out much on the phone -- there are so many people involved in the process and no one person seems to hold the ultimate decision on a day to day basis because of the teaching rotations, etc. Its a little frustrating, but just par for the course in that kind of environment.
Hope you are all well and I'll get back with more information as soon as I have it.
Liz
His counts were down today but not all the way back at ground zero, so we're hoping he will at least be home by the weekend.
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ReplyDeleteThe way back at ground zero, so we're hoping he will at least be home by the weekend.
ReplyDeleteHis counts were down today but not all the way back at ground zero, so we're hoping he will at least be home by the weekend.
ReplyDeleteThey removed his chest port on Monday afternoon when they finally got him out of ER and into a regular room.
ReplyDeleteThe way back at ground zero, so we're hoping he will at least be home by the weekend.
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