Greetings from Reagan UCLA Medical Center - Room 6159! We FINALLY made it into the room around 7:30 PM after being here since noon today! Very frustrating admission process (too long and uneventful to explain) but we are happy to finally be here in the room. Things have gone quickly since we got settled - the nurses and staff are SUPER attentive and everything actually happens much faster than it did at Los Robles (except the admission!). Ed had a chest x-ray a few minutes ago to make sure his porta-cath is still okay (it's been hurting him for a couple of days). They will start another dose of the Rituxan in a little while and then the ARA-C tomorrow, with a total of 4 doses over four 12-hour periods. That puts us here until late Sunday night or early Monday morning. We were kind of surprised when they weighed him tonight - 134 pounds, but hopefully that will start to come up as soon as he is able to eat again. We've decided we'll become serious foodies and schedule another trip through the Pacific Northwest, since we ate such insanely delicious food on our last trip there with Leo and Georgette.
That's all the news for tonight. We're both exhausted from waiting in the lobby all day - it's actually quite tiring to just sit and wait and sit and wait and sit and wait! But the facility is absolutely beautiful (it's only 3 years old) and my daughter Jennifer came by for a half hour or so this afternoon and sat with us. She is an excellent "tour guide" and gave me in the inside scoop on navigating the parking, outdoor gardens, Starbucks and good restaurants. The "cafeteria" here is amazing - huge and full of hundreds of choices of hot and cold food, kosher food, salad bar, dessert bar, vending machines, ice cream and frozen yogurts, soups, pastas, etc. It's amazing how many people they feed here everyday! We're right in the heart of Westwood, so I may take a walk if Ed is feeling okay and resting comfortably tomorrow afternoon.
I'll let you all know how he's doing later on Saturday. Thanks for your comments and messages. We read the blog comments every day!
Good Morning guys, congrats on getting into UCLA and sorry you had to sit and wait so long. Ed we gotta fatten you up when you get out - some chocolate donuts and a big glass of milk for starters, then maybe a big ass steak at that dive steak place we went to in Havasu. Glad to hear you are getting the treatment you need -- and Liz enjoy your new surroundings if you get a chance to get out. Love you guys, TC
ReplyDeleteHey ed and Liz sounds like a pretty tiresome day, well are prayers go out to the both of you, take it easy and we hope to see very soon.
ReplyDeletePete and Rosemary.
Sorry you had such a long day. Sending you healing thoughts and prayers. Take care!
ReplyDeleteDiane
Ed, you now officially weigh more than I do! I put on a few pounds after quitting smoking - I'd love to be able to find a way to give them to you! (As my mother used to say, "but us together in a paper bag, shake, and we'll come out the same!") Glad to hear that your getting such good care at UCLA. Hugs, Jeanne
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