8:20 PM Thursday, March 10, 2011

Hi all.  Just a quick update on Ed - he felt great when he woke up today.  We both had a good night's sleep and we woke up around 5:30 (our normal time) and he had good color in his face and more energy than the day before.  He took a shower and got dressed in regular clothes for the 2nd time in 24 days.  While I was at the office and running errands, Lou took Ed for a drive to look at his hot-rod in Camarillo at the shop where it's being built and then they went to Rocket Fizz to look for some hard candy.  He totally enjoyed being outside in the beautiful sunshine and we had an excellent afternoon.  Very excellent. 

Lisa, the home health care nurse, just left and she was able to get some of the medications switched back to IV infusion after seeing that the sublingual versions weren't working that well.  She's truly a caregiver in every sense of the word and an excellent teacher as well. The pharmacy delivered the new meds late this afternoon and Lisa has deemed me competent in connecting and changing out Ed's TPN and giving the IV infusions for the round-the-clock meds that keep him comfortable.  What a small world - Lisa and her boyfriend are in the same motorcycle club that Ed rode with a little about 12 years ago.  They know several people in common. Thank goodness for nurturing people like Lisa. 

Tonight, Lou and I are having a glass of wine and we're pondering a movie. Ed thought he's like to watch "Due Date" (from the makers of "Hangover"), but he's not feeling so great right now - Lisa says he will probably be exhausted after going out today, but that's usually what happens and to just keep him quiet and resting tonight and tomorrow with no plans to go out.  I'm glad the weather was warm and beautiful today - he really did enjoy getting out of the house, and he didn't even mind wearing the mask.

Thanks for the great comments - I promise you I read them to Ed and he loves to hear them.  It's fun to see how the blog is being viewed and forwarded to so many friends from so many different arenas of Ed's life - he certainly has touched a lot of people!

Well, that's the Thursday update.  I'll be back tomorrow. Good night!