11:30 PM Tuesday, March 8, 2011

Hi everyone.  Thanks for your patience today - it was a long day of getting home, but we're settled now and Ed is sleeping peacefully at his Mom's house -- just like when he was little.  We had lots of stuff going on today.  We leflt the hospital about 4:30 after the nurse removed Ed's PICC line and accessed the check port they put in a week and a half ago.  It will be nice for him not to have tubes dangling from his bicep.  On our way home, Ed insisted on one minor detour - we stopped by the hot rod shop where his car is being worked on and he got to listen to the sound of the motor - IT'S REALLY LOUD!  The car looks amazing and Ed is itching to get behind the wheel.  Shouldn't be long now.  We also stopped by the house for a minute (literally) and we checked out the progress on the bathroom - the tile looks amazing and we're excited for the unveiling.  The home health care nurse came by and got the TPN hooked up and going - it's actually quite amazing how easy and convenient it is.  We had a couple of snaffus with getting the meds transitioned and prescriptions filled, but it all worked out in the end and we're finally settled in.  As expected, the chemo caused Ed's hair to start falling out, so today he asked me to shave his head - he looks pretty cute - very "Kojak" (for sure I'm dating myself there....)  He's not feeling great - very exhausted - and still not able to have visitors until we get through the next chemo round.  We go back to the oncologist Monday morning, and if everything is on track, he'll be re-admitted to Los Robles and we'll start the chemo again on Tuesday the 15th.  He'll be there for 3 or 4 days and then hopefully we'll be able to come home again right away.   Ed really needs to rest and stay on track this next few days and we appreciate your understanding that - everything we're doing is to make sure he has the very best possible chance of getting through this as comfortably and quickly as possible.  As much as we'd like to have things be different, we are following strict instructions to the letter.  Down the road we are planning to have lots of time to celebrate and get back to our social butterfly lives. 

I'm signing off now and I will update sometime tomorrow.