3:45 PM Wednesday, March 16, 2011

Whew.... wasn't sure I was going to make it back to the computer today, what with all the running around trying to find someone to bronze the T.......just kidding.  Enough of that, although we do thank you for your comments and smiles.  We've been the buzz of the nursing staff.....up until now, we've been trying to request our faves, but now it seems the nursing staff is fighting over wanting to get assigned to us! 

Alas, they are going to have a wider circle of nurses to fight with though, because it looks like Friday we will be off to UCLA!  Dr. Menco called in some favors and got one of his associates there to make some ARA-C available to Ed - that's the chemo drug we've been trying to find.  It was pre-reserved for someone else, but Dr. Menco prevailed and we're waiting for word on a bed to become available, which is likely going to be Friday.  Yeah!  We will get some additional "inside" help from my oldest daughter who is a neurology pharmaceutical rep who navigates the intricacies of UCLA every day, all day as her territory.  I'll be glad for the help as that place is GI-NORMOUS  (bigger than giant and enormous!).  We will probably be there for 3-4 days getting back on track with the chemotherapy.

Meanwhile, Ed is, as I write, getting the Rituxan chemo.  It's been going for almost 2 hours now and it will take another 2 or 3 hours to finish, as they are giving it extremely slowly since he had a pretty tough reaction last night to the test dose.  He's okay so far and they've given him some pre-medications to help.   We have an awesome nurse today and she's super-attentive, so that feels good.   If all goes well, we may go home late tonight or early tomorrow, but only if he's feeling up to it.  Ed is still on the visitors ban because these chemos will knock his white count severely down again, but we're just trying to do everything we're told.  I guess we're all getting used to the solitude for now.

I'll jump off for now and get back to the blog later. 

Liz